New project

I have been working one a new project... this one on the computer.. a writing project about my life with Fbyro and some ways to explain it to others. Today I was working on my typical day and decided that I needed to detail out 3 kinds of days a typical day, a good day and a BAD day... well the bad day one cracked me up so I thought I would share it here... while I did combine days for the examples the fatigue lvl is correct.

Bad day: mumble to hubby as he gets up to please feed cat, roll over. Wish I had enough energy to eat. Grab the flat soda on the night stand, almost drop it, manage to spill it on the bed. Grab the towel by the bed for this reason place under me as I am not moving. Day creeps on… nap on and off, is it bed time yet??? I need to eat… hubby offers to bring me the food he is making, only he forgot what he is making upsets my tummy, ask for pasta (it always goes down) make a mess of my shirt with pasta. Oh well no shower tonight, I hope I can get out of bed tomorrow. Crawl to feed elderly cat, then back to bed for the night. Now I am awake… listen to audio book for hours until I finally get to sleep.

I love this pain scale, for fybro I have a HIGH pain tolerance (not normal) but that means that when I say I am at a 5, I am putting it against the worst pain I have ever had that really fits the top of this scale. I have been at a 2-3 daily for 13 years then when the fybro hit 3 is a GOOD number I can function with that (as long as my joints are not stiff, and the fatigue is low) I can keep to a 3 most of the time if I do nothing but sit on a heating pad, but then I cannot function cause as soon as I get up the pain goes up. silly nerves :(